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Health Companion

Improving the lives of people living with cancer
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Health Companion

Improving the lives of people living with cancer

Common frequently asked questions: 

1. How long will I be involved with the Health Companion?
That’s up to you, but we would like your involvement for between 6 months and a year to ensure we gain an accurate picture from data.

 

2. What happens next if I agree to take part?
We will email and/or text message you with a link for you to download the Health Companion and begin participating.  

 

3. How will being involved with the Health Companion benefit me?
Although there is no direct benefit to your health from taking part in the Health Companion, the information gained will contribute to a better understanding of treatment and care. Also, once you begin reporting, you will be able to see your data in easy-to-understand tables and graphs should you so wish. Having talked to patients, we know this feedback can be useful for you to understand and manage your own well-being, as well as being very useful for communicating how you are feeling to family and carers.

 

4. What other choices do I have besides using the Health Companion?
Currently, the Health Companion is the only digital information gathering platform developed to collect and understand Patient Reported Outcomes (PRO) with a view to improving cancer care and treatment. Other PRO platforms are starting to appear in many disease areas. 

5 Will my taking part in the Health Companion be kept confidential?
Yes it will be kept confidential.
The Charity, its partners and collaborators take confidentiality of patient data and your trust extremely seriously. We follow strict guidelines as set-out by Government and enforced by bodies such as Public Health England, and NHS Digital who help and audit what we do with your data.

6. Are health professionals able to view the data that I enter into Health Companion?

Doctors, Clinical Nurses and carers, etc will NOT be able to view your specific, personalised data, unless you choose to share it with them via your phone or tablet summary screens. The Health Companion is a personal health diary first, and an anonymised audit and research platform second.

7. What will happen to my data that is collected through the Health Companion?
We will use the data for audit and research working with Universities, the NHS and Industry to help develop new medicines and improve existing treatments and the services you receive.

8.Who should I contact if I have a complaint regarding the Health Companion?
You should contact either Lung Cancer Nursing UK or Mesothelioma UK directly

Tel: 0116 218 5718 

Email: HCmanager@lcnuk.org

Email: HCmanager@mesothelioma.uk.com

9. Who should I contact if I have any concerns?

You should contact either Lung Cancer Nursing UK or Mesothelioma UK directly

Tel: 0116 218 5718 

Email: HCmanager@lcnuk.org

Email: HCmanager@mesothelioma.uk.com

10. I am interested in using the Health Companion, what should I do next?

You should contact either Lung Cancer Nursing UK or Mesothelioma UK directly

Tel: 0116 218 5718 

Email: HCmanager@lcnuk.org

Email: HCmanager@mesothelioma.uk.com

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